Assessment of Quality of Life in CP Children of 4–12 Years of Age in Lahore
Article Sidebar
Main Article Content
Abstract
Background: Cerebral palsy is a non-progressive disorder of the developing brain associated with persistent disturbances of movement, posture, activity, participation, and broader psychosocial well-being. Assessment of quality of life provides information beyond motor impairment by incorporating the child's physical, emotional, social, functional, and family-related experiences. Objective: To assess caregiver-reported quality of life among children with cerebral palsy aged 4–12 years in Lahore using the CP QOL-Child proxy-report questionnaire. Methods: An analytical cross-sectional study was conducted at the Pakistan Society for Rehabilitation of the Differently Abled from April to August 2024. Purposive sampling was used to recruit 102 eligible children with cerebral palsy. Caregivers completed the 66-item CP QOL-Child proxy-report questionnaire. Scores were transformed to a 0–100 scale and summarized using descriptive statistics. Internal consistency was assessed using Cronbach's alpha. Results: The mean participant age was 7.1 ± 1.9 years; 54 (52.9%) participants were male and 48 (47.1%) were female. The overall CP-QOL score was 47.92 ± 19.98. Family health had the highest domain mean (55.49 ± 18.78), followed by social well-being and acceptance (52.41 ± 18.65), whereas feelings about functioning had the lowest mean (32.92 ± 23.76). Male and female mean scores were 49.18 ± 16.48 and 46.49 ± 15.30, respectively. Overall internal consistency was acceptable (α = 0.720), although substantial variation was present across component groupings. Conclusion: Quality-of-life scores varied considerably across domains, with comparatively lower scores in feelings about functioning and participation. Comprehensive assessment of children with cerebral palsy should therefore extend beyond motor impairment to encompass functional, psychosocial, participation, family, and service-related dimensions
Article Details
Issue
Section
This work is licensed under a Creative Commons Attribution 4.0 International License.
How to Cite
References
1. Agarwal A, Verma I. Cerebral palsy in children: an overview. J Clin Orthop Trauma. 2012;3(2):77-81.
2. Khan A, Ahmad K, Ayaz S, Akhlaq U. Cerebral palsy in Pakistani children: a hospital based survey. Cukurova Med J. 2014;39:705-11.
3. Arnaud C, White-Koning M, Michelsen SI, Parkes J, Parkinson K, Thyen U, et al. Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics. 2008;121:54-64.
4. Aran A. Quality of life in children with cerebral palsy. In: Preedy VR, Watson RR, editors. Handbook of Disease Burdens and Quality of Life Measures. New York: Springer; 2010. p. 2453-68.
5. Power R, King C, Muhit M, Heanoy E, Galea C, Jones C, et al. Health-related quality of life of children and adolescents with cerebral palsy in low- and middle-income countries: a systematic review. Dev Med Child Neurol. 2018;60(5):469-79.
6. Sameet S, Razaq H. Parent-reported health-related quality of life of children with cerebral palsy in Pakistan. J Basic Clin Med Sci. 2022;1:21-8.
7. Hanif S, Zameer A, Waheed H, Zaidi F, Ahmed I, Choudary M. Quality of life in children with cerebral palsy. Pak J Health Sci. 2023;4(9):70-4.
8. Iram A, Ghaffar T, Solangi ZA, Ayaz J, Rehman A, Yasmin N, et al. Association between socioeconomic status and quality of life among cerebral palsy children in government children hospitals and special training centers. J Musculoskelet Surg Res. 2024;8(2):142-6.
9. Javed U, Fuad M, Mahmood S, Rani B, Latif W. Evaluation of participation level of adolescents with cerebral palsy. Pak J Med Health Sci. 2022;16(10):91.
10. Keawutan P, Bell KL, Oftedal S, Davies PSW, Ware RS, Boyd RN. Quality of life and habitual physical activity in children with cerebral palsy aged 5 years: a cross-sectional study. Res Dev Disabil. 2018;74:139-45.
11. Böling ST, Varho H, Mäenpää W, Forsten I, Autti-Rämö L, Haataja L. Measuring quality of life of Finnish children with cerebral palsy. J Pediatr Rehabil Med. 2013;6(3):121-7.
12. Chen KL, Wang HY, Tseng MH, Shieh JY, Lu L, Yao KPG, et al. The Cerebral Palsy Quality of Life for Children (CP QOL-Child): evidence of construct validity. Res Dev Disabil. 2013;34(3):994-1000.
13. Viehweger E, Robitail S, Rohon MA, Jacquemier M, Jouve JL, Bollini G, et al. Measuring quality of life in cerebral palsy children. Ann Readapt Med Phys. 2008;51:119-37.
14. Das S, Aggarwal A, Roy S, Kumar P. Quality of life in Indian children with cerebral palsy using Cerebral Palsy Quality of Life Questionnaire. J Pediatr Neurosci. 2017;12(3):251-4.
15. Mohammed FM, Ali SM, Mustafa MA. Quality of life of cerebral palsy patients and their caregivers: a cross-sectional study in a rehabilitation center Khartoum-Sudan (2014-2015). J Neurosci Rural Pract. 2016;7(3):355-61.
16. Lestari AF, Sitaresmi MN, Sutomo R, Ridhayani F. Factors affecting the health-related quality of life of children with cerebral palsy in Indonesia: a cross-sectional study. Child Health Nurs Res. 2024;30(1):7-16.